CNETS Canada National NET Patient Conference (Videos)
June 02, 2017|
In April 2017, CNETS Canada, INCA member organization, hosted a national NET Patient Conference in partnership with the Canadian Association of Nuclear Medicine (CANM). The conference theme was “A Time of HOPE” and showcased the latest diagnostics and treatments, with presentations from Canada’s top multidisciplinary NET specialists and two international experts. The event was a resounding success with over 200 NET patients, caregivers and their families from across Canada in attendance.
A very important aspect of the conference was the inclusion of three NET patients who spoke about their NET cancer experience, treatments and advocating for themselves. Their personal stories were truly inspirational and a highlight of the event.
The powerful NET patient stories from the conference inspired the launch of a new webinar series, “Zebra Chat”, which features inspirational Canadian NET cancer patient stories.
CNETS Canada’s first Zebra Chat debuted on June 1, featuring Sonya Carrie, a 22-year-old young woman who had a liver transplant in December 2016.
Sonya talked about her journey with metastatic NET cancer and symptoms that appeared as young as the age of 8. Sonya’s situation had grown so dire that she could barely eat, weighed a mere 80 pounds, and couldn’t function with any sense of normalcy. As a result she sought a liver transplant and during last year’s Let’s Talk NETs campaign, Sonya held an awareness event at her church where her pastor shared her personal story and quest for a donor. A fellow church member Pete, who did not personally know Sonya, came forward to donate part of his liver and after determining he was a match the transplant surgery took place. Both Sonya and Pete are doing very well and are special friends today. Sonya’s successful transplant was certainly the result of many things falling into place at just the right time and we are delighted that Sonya’s connection with the Canadian NET community and the Let’s Talk About NETs campaign played a role in saving her life.
Needless to say our 2016 Let’s Talk NETs campaign was a huge success in Canada and we are looking forward to making the 2017 NET Awareness Day an even bigger success.