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Category: News

NETRF
The NETRF 2017 Grant opportunities Request for Application is now open

The Neuroendocrine Tumor Research Foundation (NETRF), USA, has announced a new round of scientific and clinical research grants, aimed at advancing the treatment of and the search for cures to neuroendocrine tumors (NETs). The research grants fall into three categories: Accelerator Grants, Investigator Grants, and Pilot Project Grants. Made possible in part by a generous…

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NET Patient Foundation in the Telegraph
NET Patient Foundation UK in The Telegraph

NET Patient Foundation efforts were the reason to feature the importance of NET in Telegraph Daily, UK. The report featured a friend of the reporter with NET: “I knew about NETs only because the charity devoted to raising awareness and funding research – the Net Patient Foundation – is a member of Cancer52 , the…

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Unicorn Foundation
NET patients and Unicorn Foundation Australia CEO appear at Senate Hearings

Late last year Senator Catrina Bilyk from Tasmania called for the introduction of a Senate Select Committee to look at Funding for Research into low Survival Cancers, after her own personal experience with brain cancer - reporting Unicorn Foundation Australia. 277 submissions were made to the committee from patients, carers, patient groups, research institutions, hospitals…

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INCA summit barcelona header
5th INCA NET Patient Advocacy Summit

 

For a fifth time since 2012 INCA brings together NET patient advocate leaders from around the globe to learn about the latest treatment developments and research, as well as share best practices and build common platforms. This year, for the first time INCA (International Neuroendocrine Cancer Alliance) and ENETs held a joint symposium between NET physicians and patient advocates from around the world, at the ENETS conference in Barcelona.

 

5th INCA NET Patient Advocacy Summit

Barcelona 8-10 March 2017

 

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inca header NET Pat UK
NET Patient Foundation-UK Data Project 2017

Due to a lack of ICD-10 codes for neuroendocrine cancers, it has been difficult for NET Patient Foundation – UK, INCA member organization, to extract data about NET patients from the NHS cancer registry. It is crucial that we are able to obtain data about NET cancers from the cancer registry in order to be…

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CNETSCanada-Sonya Carrie-2
CNETS Canada National NET Patient Conference (Videos)

In April 2017, CNETS Canada, INCA member organization, hosted a national NET Patient Conference in partnership with the Canadian Association of Nuclear Medicine (CANM). The conference theme was “A Time of HOPE” and showcased the latest diagnostics and treatments, with presentations from Canada’s top multidisciplinary NET specialists and two international experts. The event was a…

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CNETS India
CNETS India to expand reaching patients with partner Indian Cancer Society

CNETS India, INCA member organization, is planning collaboration with Indian Cancer Society, a nonprofit organisation working for cancer awareness and supporting patients in India, for promoting NET cancer awareness. CNETS India team shall be educating their cancer support volunteers about Neuroendocrine Cancers and partner with them to reach out to more and more patients at…

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NET Patient Foundation UK
NET Patient Foundation UK launches NET Handbook

NET Patient Foundation announced its new NET Handbook, which is a guide covering all aspects of living with NETs. The book is being sent out to hospitals to be given to all newly diagnosed NET patients. It is also available to purchase as a donation to the foundation on the organization’s website. The Handbook will…

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AMEND UK
Free booklet on issues of employment and returning to work with MEN from AMEND-UK

In a 2016 AMEND-UK, INCA member organization, made a member survey where just over half of people told that their work or career had been impacted in a negative way as a direct result of having multiple endocrine neoplasia, or a related condition. In May 2017 AMEND published a new booklet “Employment & Returning to Work”…

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NETRF
Presentations and videos from educational conference for patients in USA

The 6th Annual Focus on Neuroendocrine Tumors is a free, educational conference for patients, family members, and caregivers who are newly diagnosed, currently in treatment, or long-term survivors of neuroendocrine tumors. This year’s event was held on 5 May 2017 in Philadelphia, Pennsylvania on the University of Pennsylvania campus and was presented by Penn Medicine…

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