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Category: News

CNETS India
CNETS India informs Alpha PRRT is now available for NET patients in India

CNETS India team is happy to share that two nuclear medicine centres in India have started Alpha PRRT for NET patients.  World over, many clinical trials have established the benefit of PRRT for metastatic NETs. Alpha PRRT uses the more powerful alpha particle emitting agents, Actinium 225 or Bismuth 213, in place of Lutetium 177…

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CNETS Canada research grants
CNETS Canada announces 2017 NET Research Grant recipients

The CNETS Canada Neuroendocrine Tumour Research Grant provides each calendar year grant-in-aid for two projects up to a maximum of $40,000 per project. The NET research funding priorities were determined through consultation with the NET patient community, and input from CNETS Canada’s Scientific and Medical Advisory Board (SMAB). To be eligible for the 2017 NET…

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NET Research Foundation nutrition tips
Nutrition tips for NET patients from NET Research Foundation conference

What, when, and how you eat can help to improve your response to cancer treatment and help ease burdensome symptoms and side effects - according to University of California, San Francisco, U.S., Dietitian Greta Macaire, MA, RD, CSO, consuming the proper nutrients can mean fewer complications, faster recovery, and improved strength and energy.  She presented…

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Unicorn Foundation Australia
INCA Member in Focus: The Unicorn Foundation Australia

Every month INCA presents one of its members via an interview with the founders and governance. This month we are glad to present Unicorn Foundation Australia by interviewing Simone Leyden who is is the CEO and Co-Founder of the organization. When was the organization founded and how? The Unicorn Foundation was formed in late 2009 and…

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Pheo Para Troopers
Pheo Para Troopers, USA, invite pheo/para patients for pre-screening for inclusion in clinical trial

In the end of July 2017, Pheo Para Troppers, USA, announced a clinical research group at Yale Medical School anticipates beginning a clinical trial in the near future with pheo/para patients to test a drug already approved for use in multiple types of cancer for efficacy in our patient population. If patients are interested in…

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Unicorn Foundation Australia grant
Australian Federal Health Department supports patients living with NET by a grant to Unicorn Foundation

In the end of July 2017, Australian Federal Health Minister Greg Hunt presented the Unicorn Foundation co-founder and CEO Simone Leyden with a grant to build the resources for support and education for patients and medical community. The event included a morning tea with NET cancer patients to discuss and recognize the need for greater…

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Ipsen-INCA Patient dialogue
INCA discusses critical issues for the patient community at IPSEN’s Dialogue for Patient Care

On March 13, 2017 INCA took part in a meeting with Ipsen CEO David Meek, who invited three patient advocates from the United States and Europe to discuss such critical issues as patient empowerment, patient-centered research, involving patients in the drug development process, access to innovative drugs and the role of real-world data. The meeting…

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NET Patient Foundation 10 years anniversary
NET Patient Foundation launches the first NET retreat for 10-year anniversary

After 10 years of the NET Patient Foundation UK and having received the most amazing support from the NET community, the team wanted to give a little back to those who have to live with this disease and its unpredictable and complex nature. NET Patient Foundation teamed up with Penny Brohn Cancer Care and hired…

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PANCANJapan
NPO PanCAN Japan succeeds in boosting legislative change for cancer research support

NPO PanCAN Japan has worked with other cancer support organizations last year to lobby Ministry of Health, Labour and Welfare (MHLW), congressmen and senators to amend Cancer Control Act of 2006. Revised Cancer Control Act was finally passed last December and we were very happy and proud to learn that the revision now has a…

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NET&MEN kanker België
Second NET CoE and first lustrum for the NET&MEN Cancer Association in Belgium

Since March 2017, Belgium now has a second Center of Excellence, reported NET&MEN kanker België vzw, the Belgian association for NET and MEN patients. After the university hospital of Leuven, now also the University Hospital of Antwerp has been rewarded with this honor. The CoE status is accredited by ENETS to medical centers complying to…

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