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INCA at the 2nd Annual EURACAN Conference, Oxford, UK, 4-6 April 2018

Entitled “Sustainability and Innovation in Rare Cancer Management,“ the 2nd Annual EURACAN Conference, chaired by Prof Jean-Yves Blay and Prof Bass Hassan, offered an overview of the latest updates in rare cancers management. The conference covered multiple sessions over three days including: the Rare Cancer Pathway, facilitating communication between healthcare providers and patients, enabling technologies…

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Unraveling the Causes of Small Intestinal NETs

The first step in curing a disease is understanding it. Unfortunately, there is a lot we still don’t know about small-intestinal  NETs (SI-NETs). That’s why NETRF invested in an international team to look for a cause. The principal investigators are: Matthew Meyerson, MD, PhD, Director of Cancer Genomics at Dana-Farber Cancer Institute, Professor of Pathology at Harvard…

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PRRT One Step Closer to Being Funded for NET Patients in New Zealand

The Unicorn Foundation New Zealand has been verbally advised of the outcome of the recent Pharmac Pharmacology and Therapeutics Advisory Committee (PTAC) committee. They have agreed with the recommendation to fund PRRT for NET cancer patients in New Zealand! This is a hugely positive step forward, however there is still more work to be done…

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CarciNor Norway Welcomes a New Chair after 10 Years of Tore Aasbu’s Exceptional Leadership

CarciNor Norway held their AGM in Sandefjord (Southern Norway) on March 16th 2018. More than 100 delegates from all over Norway participated. Tore Aasbu resigned as chairman after 10 years “at the helm”. Tore has done a tremendous job during these years and thanks to his great effort and dedication, the Norwegian NET patient advocacy…

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The Carcinoid Cancer Foundation Celebrated its 50th Anniversary

The Carcinoid Cancer Foundation (CCF) celebrated its 50th anniversary on March 7, 2018 – yes, CCF is fifty years old, the oldest carcinoid/neuroendocrine tumor foundation in the United States and the world!  In recognition of this special anniversary, a flag was flown over the U.S. Capitol building in Washington, DC. CCF also released the first…

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Education on NETs – a Major Focus for CNETS Canada

CNETS Canada is planning 5 face-to-face Patient Education Days across Canada in 2018. These sessions are unique opportunities for patients to have direct contact with the doctors working in this field in their local communities and they also offer an excellent opportunity for networking with other NET patients, families and caregivers. We are also excited…

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NET Patient Foundation UK Surveys Merkel Cell Carcinoma Patients’ Needs and Provides Support

The NET Patient Foundation is dedicated to supporting anyone affected by any neuroendocrine cancer diagnosis. We are also very aware that some of the rarer forms of neuroendocrine cancer have significantly less resource. One of these rare forms is a skin neuroendocrine carcinoma - Merkel Cell Carcinoma (MCC). We have been working on understanding the…

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AMEND Receives Grant to Roll Out Services Nationwide

AMEND was pleased to receive a small grant from the UK’s Big Lottery Fund to help provide its services on a more local level. The grant enables AMEND to recruit around 10 new volunteers from around the UK to become Regional Representatives of the charity. The new roles will include responsibilities such as being a…

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NET Research Foundation Awards Six Grants Totaling $1.85 Million to Expand Understanding of NETs

The Neuroendocrine Tumor Research Foundation (NETRF) awarded six new research grants totaling $1.85 million to leading academic institutions around the world. The goal of the funding is to improve current treatments for neuroendocrine tumors (NETs) “We are funding projects with the potential to be rapidly transitioned from bench to clinic because time is critical to…

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The Second INCA/ENETS Symposium – a Collaborative Effort by NET Patient and Medical Leaders to Address Unmet Needs in NETs

Over 150 conference participants, including some of the thought-leaders in the NET medical community attended the Second INCA/ENETS Symposium on March 9, 2018. The significant increase in the number of people interested in the topics discussed compared to last year, clearly indicated the growing appreciation of the role patients can play. The focus was on…

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