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Category: News

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AMEND to Hold First Annual Training Day for Regional Volunteers

On Friday, 13th July AMEND will hold its first annual training day for 7 new regional volunteers who were recruited within 48 hours of the call going out earlier this year.  Their roles will include developing regional groups around the UK for peer support of all those affected by multiple endocrine neoplasia, succinate dehydrogenase disorders…

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CCF’s Latest Anniversary Video Tells a Wonderful Story of Friendship

CCF’s 50th anniversary video series continues with “Fate and Friendship.” When Xochi and Ellen met little did they know they would form a unique bond. Together, these awesome friends have held each other up, provided comfort during difficult times, and navigated next steps in the journey of living with neuroendocrine cancer. This video is part…

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Pheo Para Alliance Celebrates Merger with Pheo Para Troopers at its 9th Annual Gala

Bethesda, MD – “Stronger United” was the theme of the Pheo Para Alliance’s 9th annual gala in May celebrating its recent merger with the Pheo Para Troopers and raising over $70,000 to advance its mission to support pheochromocytoma and paraganglioma (Pheo Para) patients through research and advocacy. Prior to the merger, the Pheo Para Alliance…

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NETRF Seed Funding Helps Grow the Field

Two NETRF-funded researchers received Career Development Awards at the 2018 annual meeting of the American Society of Clinical Oncology (ASCO), one of the largest and most respected gatherings of physicians in the field of oncology. The awards, offered by ASCO’s Conquer Cancer Foundation, fund three years of research on patient-focused topics. Award Winners: Daniel Halperin,…

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Team Zebra Ottawa Raises $13,000 for NET Cancer Research

Congratulations to the amazing Team Zebra Ottawa, who participated at the Tamarack Ottawa Race Weekend, raising $13,000 for NET cancer research in Canada! Thank you to the members of the team: Natalie Mezey (Team Captain), Hunter Fox, Bryde Fresque, Catharine Young, Ken Young, Alisha Bailey, Stephanie Goubau, Claire MacArthur and a very special thank you…

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NET Patient Foundation Hosts First Meeting of Dieticians with Interest in NETs – DING

The NET Patient Foundation was delighted to host the first European dietetic group meeting - DING - Dieticians Interested in NETs Group. Around 25 dieticians came together from across the UK, the Netherlands and Denmark to educate and share issues that are effecting our NET patients. Controlling symptoms caused by this disease is such an…

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NETRF Announces Grant Funding for Neuroendocrine Cancer Research

The Neuroendocrine Tumor Research Foundation (NETRF) has announced its latest Request for Applications (RFA) and invites innovative research applications in neuroendocrine tumors (NETs) that can bring the field closer to more effective therapies. “We are looking to fund research capable of having a rapid impact on improving care for NET patients,” said Elyse Gellerman, NETRF…

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Letting Go and Looking Forward – CCF Anniversary Video Speaks About the Benefit of Yoga

CCF’s 50th anniversary video series continues with “Letting Go and Looking Forward.” Diagnosed with a pancreatic neuroendocrine tumor in 2014, Stacie Chevrier’s first reaction was fear and anxiety. Then she found yoga, where she is strong, present, and in control. “You have to find something to be grateful for every day, because there is always…

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AMEND Organizes Trekking Weekend to Raise Funds

The Yorkshire Three Peaks, in the Yorkshire Dales, represents a challenge for the keenest of walkers from 29th June to 1st July, 2018. To scale three mountains in two days is no mean feat and provides an exhilarating and demanding trek in some of the most spectacular countryside England has to offer. This fundraising event…

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Announcement of $2.5 Million for Research Into Low Survival Cancers in Australia

The Victorian Low Survival Cancers Alliance is a group of 11 organisations that are advocating to increase research funding for cancers with a five-year survival rate of less than or equal to 30%. For some of these cancers, survival is as low as 6%. The Alliance formed in 2016, in which Unicorn Foundation was a…

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