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Pancreas Journal
Global NET Patient Survey published in medical journal Pancreas

The Pancreas, Journal of neuroendocrine tumors and pancreatic diseases and sciences, published the article Patient-Reported Experience of Diagnosis, Management, and Burden of Neuroendocrine Tumors: Results From a Large Patient Survey in the United States, spreading among medical community the US results of the Global NET Patient Survey in full text. The article was published in…

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Unicorn Foundation Australia
Patients can join The International Symposium on Phaeochromocytoma and Paraganglioma in August

Unicorn Foundation Australia, INCA member organization, is part of the organising committee of the 2017 International Symposium on Pheochromocytoma and Paraganglioma conference in Sydney taking place from 30 August - 2 September 2017. Patients or caregivers affected by MEN (1 or 2), Paraganglioma's, Phaeochromocytoma's or VHL can attend this expert meeting to have the opportunity…

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NETRF grants
NETRF announced in April largest NET research commitment ever

NET Research Foundation (NETRF), INCA member organization, announced on 27 April 2017 its largest research commitment ever - $4 million in collaborative grants - most from its new Accelerator Grants program to study neuroendocrine tumors (NETs). Accelerator Grants recognize innovative and transformative research of NET drivers, capable of expanding our understanding of the disease and…

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EURACAN
INCA represented at EURACAN meeting in Lyon, France, in April 2017

INCA was part of a kick-off EURACAN meeting, held on 21-22 April 2017 in Lyon, France.  EURACAN Platform is a European Commission-funded project bringing together 28 European rare cancer institutions and organisations to work together in a unique collaboration. The centres are sharing infrastructures and collaborating on projects to help advance cancer research and treatment.…

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Carcinoid Cancer Foundation USA
Carcinoid Cancer Foundation launched free self-care application for 7 countries

The Carcinoid Cancer Foundation (CCF), INCA member organization, and its partner Self Care Catalysts (SCC), announced in April 2017 that the Carcinoid NETs Health Storylines app, helping NET patients to manage self-care, is now available in the following countries: United States, Canada, the UK, Ireland, Australia, New Zealand, and Singapore. Everything a NET patient records…

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Inca blog Bill ENETS 1
Notes from ENETS 2017

 

Blog post by Bill Claxton.
Barcelona 8-10 March

Notes from ENETS 2017

ENETS is the world’s premier conference on neuroendocrine cancer, this year attended by more than 1200 physicians and a few dozen patient advocates. The ENETS conference highlighted the latest in understanding in tumor biology as well as offering the most current and relevant aspects of neuroendocrine tumor (NET) advances in diagnostics and therapeutics.

 

Bill Claxton, one of the founders of CNETS Singapore, is a well known patient advocate. Bill has been involved in video recording of many international carcinoid and neuroendocrine tumor conferences. These videos provide an excellent resource for patients, caregivers and physicians. Read more from Bill, Good news for NET Cancer
Learn more; Webinar Series with NET Cancer specialists and Webinar for Lung NETs

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NET conference
Videos from NETRF-sponsored patient educational conference in US available

The Neuroendocrine Tumor Research Foundation (NETRF), INCA member organization, sponsored a superb patient and family educational conference in February 2017 at Stanford University - Sixth Annual Bay Area NET Conference. It was hosted by the Stanford Cancer Center and NET Research Foundation, in cooperation with UCSF Helen Diller Family Comprehensive Cancer Center, and the NorCal…

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INCA AGM 2017
2016 AGM Summit of INCA: Reporting a successful year

INCA held its Annual General meeting on 10 March 2017 in Barcelona, Spain, after the first convergence symposium with medical experts - INCA/ENETS symposium - where more than 200 participants from across the globe attended. INCA AGM reported a successful 2016 and noted important strategic decisions’ output such as the start of a real collaboration…

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header Factbox NET1
Factbox NET Cancer

 

Neuroendocrine Tumors (NETs) are a family of cancers that cause tumors in the neuroendocrine system.

 

Factbox

 

Neuroendocrine Tumours (NETs) are a family of cancers that cause tumours in the neuroendocrine system. The neuroendocrine system consists of nerve and gland cells. It produces hormones and releases them into the bloodstream. NETs are generated by cells that release the hormones. The majority of NETs are found in the intestine, pancreas and the lungs.(4)

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header Policy 15
How to improve NET care

 

The NET Platform is the coalition of physicians, researchers, patient representatives, nurse specialists and industries working to address the needs of the NET community. The challenges of NETs, – Knowledge in diagnosis, Patient journey, Research and Innovation.

Policy recommendations on how
NET care can be improved

To address the numerous challenges in the management of rare cancers such as neuroendocrine tumours (NETs), NET patient representatives from INCA and its member organizations and leading healthcare professionals (The NET Platform), met with policy makers in the European Parliament on 10 November, World NET Cancer Day.

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