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The Carcinoid Cancer Foundation Celebrated its 50th Anniversary

The Carcinoid Cancer Foundation (CCF) celebrated its 50th anniversary on March 7, 2018 – yes, CCF is fifty years old, the oldest carcinoid/neuroendocrine tumor foundation in the United States and the world!  In recognition of this special anniversary, a flag was flown over the U.S. Capitol building in Washington, DC. CCF also released the first…

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Education on NETs – a Major Focus for CNETS Canada

CNETS Canada is planning 5 face-to-face Patient Education Days across Canada in 2018. These sessions are unique opportunities for patients to have direct contact with the doctors working in this field in their local communities and they also offer an excellent opportunity for networking with other NET patients, families and caregivers. We are also excited…

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NET Patient Foundation UK Surveys Merkel Cell Carcinoma Patients’ Needs and Provides Support

The NET Patient Foundation is dedicated to supporting anyone affected by any neuroendocrine cancer diagnosis. We are also very aware that some of the rarer forms of neuroendocrine cancer have significantly less resource. One of these rare forms is a skin neuroendocrine carcinoma - Merkel Cell Carcinoma (MCC). We have been working on understanding the…

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AMEND Receives Grant to Roll Out Services Nationwide

AMEND was pleased to receive a small grant from the UK’s Big Lottery Fund to help provide its services on a more local level. The grant enables AMEND to recruit around 10 new volunteers from around the UK to become Regional Representatives of the charity. The new roles will include responsibilities such as being a…

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NET Research Foundation Awards Six Grants Totaling $1.85 Million to Expand Understanding of NETs

The Neuroendocrine Tumor Research Foundation (NETRF) awarded six new research grants totaling $1.85 million to leading academic institutions around the world. The goal of the funding is to improve current treatments for neuroendocrine tumors (NETs) “We are funding projects with the potential to be rapidly transitioned from bench to clinic because time is critical to…

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The Second INCA/ENETS Symposium – a Collaborative Effort by NET Patient and Medical Leaders to Address Unmet Needs in NETs

Over 150 conference participants, including some of the thought-leaders in the NET medical community attended the Second INCA/ENETS Symposium on March 9, 2018. The significant increase in the number of people interested in the topics discussed compared to last year, clearly indicated the growing appreciation of the role patients can play. The focus was on…

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INCA Members Summit – an Inspirational and Constructive Meeting

The Annual INCA General Membership Meeting and Members Summit gathered 16 member organizations from 14 countries around the globe in Barcelona on March 5-6, just two days before the start of the 15th ENETS Conference. In addition to a review of NET Cancer Day 2017 and the Unmet Needs initiative, as well as draft plans…

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ESO Masterclass in Cancer Patient Advocacy – Learning to Be Better Advocates

56 patient advocacy leaders representing 23 European cancer patient networks gathered in Lisbon at the end of February 2018 to participate in the 3rd edition of the ESO Masterclass in Cancer Patient Advocacy "Working Towards Stronger and More Effective Advocacy in Europe", organized by the European School of Oncology (ESO). We looked at how we…

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The Unicorn Foundation Australia to host the 6th Annual APNETS Meeting

  The Unicorn Foundation looks forward to hosting the 6th Annual Meeting of the Asia Pacific Neuroendocrine Tumor Society (APNETs) taking place on 9-11 November 2018 at Melbourne Convention and Exhibition Centre. Due to the massive success of the 4th World Theranostics Congress in 2016, an international scientific meeting is to be convened by a…

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NET Research Foundation Supports a Project for Understanding and Treating NETs: In the Form of Laboratory Mini-Organs

Will the ability of a Dutch molecular geneticist to build miniature human organs in a Petri dish solve a decade’s old problem in NET research? How the tiniest laboratory replicas of your small intestine might help scientists run a dress rehearsal to see if your next treatment will work. Researchers use laboratory models to understand…

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