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Inca blog Bill ENETS 1
Notes from ENETS 2017

 

Blog post by Bill Claxton.
Barcelona 8-10 March

Notes from ENETS 2017

ENETS is the world’s premier conference on neuroendocrine cancer, this year attended by more than 1200 physicians and a few dozen patient advocates. The ENETS conference highlighted the latest in understanding in tumor biology as well as offering the most current and relevant aspects of neuroendocrine tumor (NET) advances in diagnostics and therapeutics.

 

Bill Claxton, one of the founders of CNETS Singapore, is a well known patient advocate. Bill has been involved in video recording of many international carcinoid and neuroendocrine tumor conferences. These videos provide an excellent resource for patients, caregivers and physicians. Read more from Bill, Good news for NET Cancer
Learn more; Webinar Series with NET Cancer specialists and Webinar for Lung NETs

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NET conference
Videos from NETRF-sponsored patient educational conference in US available

The Neuroendocrine Tumor Research Foundation (NETRF), INCA member organization, sponsored a superb patient and family educational conference in February 2017 at Stanford University - Sixth Annual Bay Area NET Conference. It was hosted by the Stanford Cancer Center and NET Research Foundation, in cooperation with UCSF Helen Diller Family Comprehensive Cancer Center, and the NorCal…

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INCA AGM 2017
2016 AGM Summit of INCA: Reporting a successful year

INCA held its Annual General meeting on 10 March 2017 in Barcelona, Spain, after the first convergence symposium with medical experts - INCA/ENETS symposium - where more than 200 participants from across the globe attended. INCA AGM reported a successful 2016 and noted important strategic decisions’ output such as the start of a real collaboration…

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header Factbox NET1
Factbox NET Cancer

 

Neuroendocrine Tumors (NETs) are a family of cancers that cause tumors in the neuroendocrine system.

 

Factbox

 

Neuroendocrine Tumours (NETs) are a family of cancers that cause tumours in the neuroendocrine system. The neuroendocrine system consists of nerve and gland cells. It produces hormones and releases them into the bloodstream. NETs are generated by cells that release the hormones. The majority of NETs are found in the intestine, pancreas and the lungs.(4)

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header Policy 15
How to improve NET care

 

The NET Platform is the coalition of physicians, researchers, patient representatives, nurse specialists and industries working to address the needs of the NET community. The challenges of NETs, – Knowledge in diagnosis, Patient journey, Research and Innovation.

Policy recommendations on how
NET care can be improved

To address the numerous challenges in the management of rare cancers such as neuroendocrine tumours (NETs), NET patient representatives from INCA and its member organizations and leading healthcare professionals (The NET Platform), met with policy makers in the European Parliament on 10 November, World NET Cancer Day.

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inca-header-learn-lunge
Lung NETs – from NET Cancer specialists

Lung NET Cancer specialist at Asia Pacific Neuroendocrine Tumor Society (APNETS) conference 2016.

Webinar for Lung NETs

 A series of webinars from Lung NET Cancer specialist. Produced by CNETS SG at Asia Pacific Neuroendocrine Tumor Society (APNETS) conference 2016. Many of the talks are of particularly interest to NET Cancer advocates, and also to patients and caregivers.  View presentations from; Marianne Pavel, Rodney Hicks, Sugandha Dureja, Frank Ulrich Pape, David Tai, Kjell Oberg and many more. 

Find more from the CNETS Ipsen 2015-2016 Webinar Series at https://itr8.wistia.com/projects/4eujigyhr0

Thanks to Carcinoid & Neuroendocrine Tumor Society of Singapore, CNETS SG, for sharing and producing the webinar. Also thanks to Ipsen Pharma for their support creating these videos.

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brussel-16-header-inca-blog-news
The NET Platform members call for more action on NETs

The NET Platform is the coalition of physicians, researchers, patient representatives, nurse specialists
and industries working to address the needs of the NET community.

 

The NET Platform members call for more action on Neuroendocrine Tumours (NETs)

Neuroendocrine tumours (NETs) are an increasingly common, yet poorly understood form of cancer. Given the benign or non-specific symptoms of the disease, patients are often misdiagnosed for many years. The result is that by the time the correct diagnosis is in place, life expectancy is drastically reduced.

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zebra
Why the Zebra?

  Why is the zebra associated with NET Cancer? In medicine, the term “zebra” is used in reference to a rare disease or condition, like Neuroendocrine (NET) Cancers. – Medical students are thought to assume that the simplest explanation is usually the best, i.e., it is usually correct to look for common rather than exotic causes…

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header-inca-blog-news-webinar
NET Cancer webinar series

NET Cancer specialist at Asia Pacific Neuroendocrine Tumor Society (APNETS) conference 2016.

Webinar Series with NET Cancer specialists

 A series of webinars from NET Cancer specialist. Produced by CNETS SG at Asia Pacific Neuroendocrine Tumor Society (APNETS) conference. Many of the talks are of particularly interest to NET Cancer advocates, and also to patients and caregivers.  View presentations from; Marianne Pavel, Rodney Hicks, Sugandha Dureja, Frank Ulrich Pape, David Tai, Kjell Oberg and many more. 

Find more from the CNETS Ipsen Webinar Series at https://itr8.wistia.com/projects/4eujigyhr0

Thanks to Carcinoid & Neuroendocrine Tumor Society of Singapore, CNETS SG, for sharing and producing the webinar. Also thanks to Ipsen Pharma for their support creating these videos.

Read More
header-inca-policy
Policy recommendations NETs

 

The challenges of NETs, – Knowledge in diagnosis, Patient journey, Research and Innovation.

Policy Recommendations on Neuroendocrine Tumors

To address the numerous challenges in the management of rare cancers such as neuroendocrine tumours (NETs), NET patient representatives from INCA and its member organizations and leading healthcare professionals (The NET Platform), met with policy makers in the European Parliament on 10 November 2015.

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