• Icon International Neuroendocrine Cancer Alliance

  • Mail: post@incalliance.org

Blog

Pheo Para Alliance
Pheo Para Alliance and Pheo Para Troopers to merge in one organization

Pheo Para Alliance and Pheo Para Troopers, the two most recognized global nonprofit organizations focusing on pheochromocytoma and paraganglioma (pheo/para) have announced their intentions to merge. The goal of the merger is to optimize assistance to patients of this orphan cancer. Historically, the Pheo Para Alliance has focused on donor programs that support research and…

Read More
SiobhanConroy, Unicorn Foundation New Zealand
Unicorn Foundation New Zealand campaigns for government funding of PRRT for NET patients

Unicorn Foundation New Zealand and eight more cancer local organizations presented a manifesto to the Minister of Health, politicians and their health advisors in a campaign to encourage all political parties to work with the NGOS to help Kiwis receive improved cancer care, funding and access to treatment no matter where one lives in New…

Read More
CNETS India
CNETS India informs Alpha PRRT is now available for NET patients in India

CNETS India team is happy to share that two nuclear medicine centres in India have started Alpha PRRT for NET patients.  World over, many clinical trials have established the benefit of PRRT for metastatic NETs. Alpha PRRT uses the more powerful alpha particle emitting agents, Actinium 225 or Bismuth 213, in place of Lutetium 177…

Read More
CNETS Canada research grants
CNETS Canada announces 2017 NET Research Grant recipients

The CNETS Canada Neuroendocrine Tumour Research Grant provides each calendar year grant-in-aid for two projects up to a maximum of $40,000 per project. The NET research funding priorities were determined through consultation with the NET patient community, and input from CNETS Canada’s Scientific and Medical Advisory Board (SMAB). To be eligible for the 2017 NET…

Read More
NET Research Foundation nutrition tips
Nutrition tips for NET patients from NET Research Foundation conference

What, when, and how you eat can help to improve your response to cancer treatment and help ease burdensome symptoms and side effects - according to University of California, San Francisco, U.S., Dietitian Greta Macaire, MA, RD, CSO, consuming the proper nutrients can mean fewer complications, faster recovery, and improved strength and energy.  She presented…

Read More
Unicorn Foundation Australia
INCA Member in Focus: The Unicorn Foundation Australia

Every month INCA presents one of its members via an interview with the founders and governance. This month we are glad to present Unicorn Foundation Australia by interviewing Simone Leyden who is is the CEO and Co-Founder of the organization. When was the organization founded and how? The Unicorn Foundation was formed in late 2009 and…

Read More
Pheo Para Troopers
Pheo Para Troopers, USA, invite pheo/para patients for pre-screening for inclusion in clinical trial

In the end of July 2017, Pheo Para Troppers, USA, announced a clinical research group at Yale Medical School anticipates beginning a clinical trial in the near future with pheo/para patients to test a drug already approved for use in multiple types of cancer for efficacy in our patient population. If patients are interested in…

Read More
Unicorn Foundation Australia grant
Australian Federal Health Department supports patients living with NET by a grant to Unicorn Foundation

In the end of July 2017, Australian Federal Health Minister Greg Hunt presented the Unicorn Foundation co-founder and CEO Simone Leyden with a grant to build the resources for support and education for patients and medical community. The event included a morning tea with NET cancer patients to discuss and recognize the need for greater…

Read More
Ipsen-INCA Patient dialogue
INCA discusses critical issues for the patient community at IPSEN’s Dialogue for Patient Care

On March 13, 2017 INCA took part in a meeting with Ipsen CEO David Meek, who invited three patient advocates from the United States and Europe to discuss such critical issues as patient empowerment, patient-centered research, involving patients in the drug development process, access to innovative drugs and the role of real-world data. The meeting…

Read More
NET Patient Foundation 10 years anniversary
NET Patient Foundation launches the first NET retreat for 10-year anniversary

After 10 years of the NET Patient Foundation UK and having received the most amazing support from the NET community, the team wanted to give a little back to those who have to live with this disease and its unpredictable and complex nature. NET Patient Foundation teamed up with Penny Brohn Cancer Care and hired…

Read More
Copyright © 2015 International Neuroendocrine Cancer Alliance. All right reserved.
Make a Donation
Paybal button