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Global NET Survey
A website promotes The Global NET Survey collaborative project of INCA and Novartis

A website http://netcancerexperience.com/ is being promoted with a wealth of NET patient stories that articulate their experience. The idea of the website is to illustrate the findings of the Global NET Survey conducted by the collaborative efforts of INCA and Novartis. The website contains real-life stories, some of them by INCA members’ representatives, and offers…

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NET Patient Foundation
INCA Member in Focus: NET Patient Foundation UK

Every month INCA presents one of its members via an interview with the founders and governance. This month we are glad to present NET Patient Foundation UK by interviewing Catherine Bouvier who is is the CEO  of the organization. When was the organization founded and how? The NET Patient Foundation was founded in 2006, but the…

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NET Patient Foundation NET Cancer Day
NET Patient Foundation UK encourages for NET Cancer Day Coffee Morning

NET Patient Foundation UK announced that for this year's NET Cancer Day they are asking everyone to hold a coffee morning to help raise awareness of Neuroendocrine Cancer and to raise some much needed funds for the organization. Volunteers are invited to sign up by completing the form on the website and NET Patient Foundation…

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Carcinoid Cancer Foundation
The Carcinoid Cancer Foundation USA Launches New Educational Carcinoid Syndrome Website

The Carcinoid Cancer Foundation USA has launched a new website, www.carcinoidsyndrome.org. This website is designed as a space for everything about carcinoid syndrome – from diagnosis and treatment to news and community updates. The Carcinoid Cancer Foundation’s web initiative is to ensure a place for education and information for all who would have any questions…

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Maureen Coleman Award 2016
CNETS Canada requests nominations for the Maureen Coleman Award

INCA member CNETS Canada has announced start of nominations for annual Maureen Coleman Award.  This award recognizes an individual for their outstanding contribution to the neuroendocrine cancer patient community. The late Maureen Coleman was the Founder and Past-President of CNETS Canada who passed away in 2013 from neuroendocrine cancer. Maureen was a remarkable woman with…

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Lets Talk about NETs
INCA prepares for NET Cancer Day 2017

INCA prepares for NET Cancer Day 2017, November 10, to reinforce the campaign Let’s Talk about NETs with a focus on Unmet needs in information about NETs. This year the campaign will again distribute NET Cancer Day coffee cups, which can be used to strike partnerships with local cafes, hospitals, public institutions, to help raise…

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NET Research Foundation conferences
NET Research Foundation USA announces two Patient & Caregiver Educational Conferences

INCA member US NET Research Foundation’s Patient & Caregiver Educational Conferences draw neuroendocrine cancer patients and caregivers from across USA. Since their first conference in 2009, more than 3,000 attendees have participated in those events, and they continue to provide a vitally needed opportunity for education and fellowship. To ensure there are no financial barriers…

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NET Cancer Day Unicorn Foundation
Unicorn Foundation Australia calls for cafes to join Let’s Talk about NETs

Unicorn Foundation Australia calls for cafes to raise awareness on NETs on this year's NET Cancer Day on November 10th, by joining the campaign with using branded coffee cups for the day. The cafes will receive posters, flyers, balloons and other promotional material as well as donation tins and receipt booklets. There is a template…

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NETRF-logo
INCA Member in Focus: The Neuroendocrine Tumor Research Foundation (NETRF), USA

Every month INCA presents one of its members via an interview with the founders and governance. This month we are glad to present The Neuroendocrine Tumor Research Foundation (NETRF), USA by interviewing Ron Hollander who is is the Executive Director of the organization. When was the organization founded and how? We were founded in 2005 as the Caring…

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PriMeMasterclass in NETs, NET Cancer Day
INCA on Meaningful Patient Advocacy – at a prIME Masterclass in NETs on NET Cancer Day

Teodora Kolarova, INCA Executive Director was invited to speak about Meaningful Patient Advocacy at the prIME Masterclass in Neuroendocrine Tumours to be held on 10-11 November in Amsterdam, the Netherlands (venue: De Koepelkerk at the Renaissance Amsterdam Hotel). The Masterclass, co-chaired by Dermot O’Toole and Philippe Ruszniewski, will engage experts in the field of neuroendocrine…

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