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The World Lost Aretha Franklin to NETs

The Queen of Soul, Aretha Franklin sadly died of neuroendocrine cancer (NETs) of the pancreas, the very same cancer that killed Apple founder Steve Jobs and takes the life of thousands of people each year. Neuroendocrine cancer is a type of cancer that is very different to the more common pancreatic cancer. As announced in…

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INCA Unmet Needs in NETs Initiative Results to be Presented at Key Medical Conferences around the World

Two of the INCA abstracts based on the findings of the Unmet Needs in the Global NET Community Initiative have been accepted for poster presentation: - "Unmet needs in the global NETs patient community from the perspectives of patients, patient advocates and NET health professionals" - at the upcoming 2018 NANETS Annual Multidisciplinary NET Disease…

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CNETS Canada NET Research Priorities Survey Results

In March CNETS Canada reached out to the patient community through an online, anonymous survey to gather feedback and input on setting the research priorities for CNETS Canada sponsored grants for the next 2-3 years. 187 responses from across Canada were received with 75% of the replies from patients. One of the most significant findings…

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NETRF Works to Take PRRT to Next Level

The Neuroendocrine Tumor Research Foundation (NETRF) has invested more than $1.5 million in advancing a precision form of radiation therapy for NETs called Peptide Receptor Radionuclide Therapy (PRRT). Improving efficacy and safety Three NETRF-funded studies are looking at how existing approaches to PRRT can be improved to: Expand the number of patients able to benefit from PRRT…

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AMEND Raises Almost £15,000 During Yorkshire Three Peaks Challenge

On the weekend of 30 June, a 13-strong team climbed three famous English mountains (Pen-y-Ghent, Ingleborough and Whernside) in the stunning scenery of the Yorkshire Dales to raise money for AMEND.  With exceptional weather in England this summer, the team, including several patients, had to deal with temperatures of up to 32 degrees celsius and…

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NET Patient Foundation Reports Success in Treatment Availability in UK

For a couple of years now, the UK has struggled with NET treatments being unavailable, due to lack of NHS approval. The NPF is however delighted with the three positive outcomes it has received this month. Patients, healthcare professionals and industry groups have been working so hard to bring us back to a service where…

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CCF’s 50th Anniversary Video Series Continues With “Laughter Is the Best Medicine.”

Steve Mazan has known since he was a kid that he wanted to make people laugh. A diagnosis of neuroendocrine cancer in 2005 made this stand-up comedian and inspirational speaker more determined than ever to realize his dream of being on the David Letterman show. He was told he had 5 years to live; 13…

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Unicorn Foundation Successfully Receives Two Grants

The Unicorn Foundation has received two grants recently, $70,000 to support the provision of their Nurse support service and $200,000 to an application to support the CONTROL NETs study. Here is an update from Principal Investigator, A/Prof Nick Pavlakis: Great news was received with the award of a $200,000 grant from Tour de Cure to…

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INCA Animation vol 4 Infographic_26 10 2017
Further Reach of INCA Unmet Needs Initiative

Given the scope of the initiative, which offers huge potential for further reach, INCA Survey on Unmet Needs in the Global NET Community generated a number of abstracts, submitted to the major cancer congresses taking place by the end of the year, including ESMO, NANETS and APNETS. Bringing the findings of this research closer to…

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NET Patient Foundation Launches Packs for New Patients

The NET Patient Foundation is pleased to announce that its pack for new patients is now available. NPF provides this pack to hospitals across the UK to ensure every new patient receives useful and straightforward information created just for them. It contains a USB wristband which includes informative videos and a comprehensive guide to life…

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